Health Education
澳門失智症照顧者對世界衛生組織線上學習平台本地化的看法
吳建煒1、謝淑玲1、李衛燕1、肖東霞2、朱明霞1*
作者訊息:
*通訊作者:
zmx@kwnc.edu.mo
1澳門鏡湖護理學院;2澳洲弗林德斯大學;項目資助:澳中基金會(NFACR-126)
Dementia caregivers' perspectives on the adaptation of World Health Organization iSupport platform in Macao
Jianwei Wu1, Sok Leng Che1, Wai In Lei1, Dongxia Xiao2, Mingxia Zhu1*
Author Information:
*Corresponding author:
zmx@kwnc.edu.mo
1Kiang Wu Nursing College of Macau; 2Flinders University, Australia; Project Funding: National Foundation of Australia-China Relations (NFACR-126)
【摘要】
目的:世界衛生組織開發了一個失智症照顧者的線上學習平台(iSupport),本研究旨在瞭解澳門失智症照顧者對該平台中文譯本的看法,為該平台的本地化提供參考。方法:採用描述性質性研究設計,分兩階段收集資料,對象為失智症家庭照顧者(12位)及社區長者機構照顧者(13位),階段一收集及分析受訪者閱讀學習平台材料後的修改意見記錄;階段二將家庭照顧者和機構照顧者各分成3個小組進行焦點訪談;將錄音轉錄成逐字稿進行主題分析。結果:綜合家庭照顧者和機構照顧者的意見,確定了4個主題,包括:(1)便利化學習和獲得情感支持是失智症家庭照顧者進行線上學習的促使因素;(2)網站不夠簡單明瞭及不夠直接高效是失智症家庭照顧者進行線上學習的阻礙因素;(3)對學習平台進行文化和服務資訊的本地化調適;(4)提升線上學習平台可及性和可持續發展的建議。結論:澳門家庭照顧者對失智症線上學習平台具有較大需求,經本地化調適的iSupport平台有望成為線下教育培訓的重要補充,同時要關注平台的多元、可及和可持續性,考慮適度向粵港澳大灣區甚至更多省市延伸,以及結合國內「互聯網+養老」的發展浪潮,不斷滿足失智症患者及家庭照顧者的需求。
【關鍵詞】
澳門;本地化調適;失智症照顧者;失智症支持計劃;線上學習
Abstract:
Objective: An online learning platform (iSupport for Dementia) for dementia caregivers was developed by the World Health Organization. This study aims to understand dementia caregivers' perspectives on the adaptation of this platform in Macao. Methods: A qualitative descriptive design was applied in the study. The data was collected from 12 dementia family caregivers and 13 institutional caregivers of community elderly centers in two stages. In the first stage, the records of the participants ́ revision opinions on the learning platform after reading the materials were collected and analyzed. In the second stage, family caregivers and institutional caregivers were respectively divided into 3 groups for focus interviews. Then transcribe the recordings into verbatim transcripts for thematic analysis. Results: Combining the views of family caregivers and institutional caregivers , four themes were identified and described as follows: (1) Conveniently learning and access to emotional support are motivators for online learning among dementia family caregivers; (2) Not simple and efficient enough of the website are barriers to online learning for dementia family caregivers; (3) Adaptations of iSupport platform in terms of culture and service information; (4) Suggestions for improving the accessibility and sustainable development of iSupport platform. Conclusions: Dementia family caregivers in Macao have great demand for online learning. The adapted iSupport platform is expected to be an important supplement to offline education and training. iSupport 's diversity, accessibility, sustainability and extending to the Guangdong-Hong Kong-Macao Greater Bay Area and more provinces and cities should be considered. We should continue to meet the needs of dementia patients and family caregivers in combination with the development wave of "Internet + elderly care" in China.
Keywords:
Macao; adaptation; dementia caregivers; dementia support programme; online learning